My wife has recently been diagnosed with a number of life altering medical conditions, making her life increasingly challenging and in need of care.
Although she is a very strong, independent and resourceful person, she still needs care and consideration.
Like so many other families who have someone who is disabled in some way, we have had to come to terms with the adjustments and life changes she has had to make.
We have also been witness to some very kind and helpful people and organisations. Unfortunately we have also witnessed thoughtlessness, ignorance and some shameful behaviour.
I want understand and appreciate these conditions and the challenges that come with them, in order not to just help my wife, but also to raise awareness of these conditions to others.
Connective Tissue Disorder
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